Pause for PBD is October 5, 2017 and celebrates the 7th anniversary of the founding of the Global Foundation for Peroxisomal Disorders (GFPD), an international non-profit organization headquartered in Tulsa. In 2010 After learning that her daughter, Ginny, was diagnosed with a rare, genetic, terminal condition called Peroxisome Biogenesis Disorder (PBD), Tulsan Melissa Bryce Gamble set out to find other parents facing a similar fate. Melissa’s desire to raise funds for research, support families, and promote awareness of PBD led to the formation of the Global Foundation for Peroxisomal Disorders (GFPD) in October of 2010.
Now, seven years later, the GFPD serves over 400 families affected by PBD-ZSD in 31 countries around the world. Our annual awareness day, #PAUSEforPBD, celebrates all the GFPD has accomplished in moving towards a cure for PBD and most importantly, the beautiful children affected by this rare, terminal condition.
36 Degrees North will host Tulsa’s celebration for #PAUSEforPBD on Thursday, October 5th, 2017.
11:00 a.m. – 1:00 p.m.
- Cookies from OKCookieMomster
- GFPD Merchandise for sale by Tulsa company, GreenHouse Clothing
- Meet GFPD Board members and staff
5:00 p.m. – 8:00 p.m.
- Come and go Happy hour, food and drinks celebrating the 7th anniversary of the GFPD
- Hear from GFPD founder, Melissa Bryce Gamble, GFPD staff, volunteers, and a family facing PBD-ZSD about the impact of the GFPD.
Join us on Facebook @GlobalFoundPD, Instagram @TheGFPD, and Twitter @GlobalFoundPD
Show support by taking a moment to pause for individuals & families affected by Peroxisome Biogenesis Disorders. Release a balloon, say a prayer, light a candle, meditate, have a moment of silence... be creative! Reflect, honor and remember those impacted by PBD. Share your experiences in words, photos or videos on your own Facebook, Instagram, Twitter or Snapchat using #PAUSEforPBD!
Learn more about the Global Foundation for Peroxisomal Disorders at www.thegfpd.org.